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WORK GROUP 5

Dissemination

Exploitation and dissemination

The objective of WG5 is in part to communicate and disseminate scientific information via publication outlets, aimed at a general public, and in part to present policy makers with key outcomes of EDEM’s work, hence maximising the outreach of EDEM’s work for the benefit of dementia care stakeholders. EDEM will encourage and help Open Access publishing.

News and Events

Work group description WG5

Tasks

T5.1: Promote joint dissemination and communication of knowledge and experiences of EDEM. T5.2: Ensure continuous dissemination and exploitation of information from EDEM via accessible, user-friendly websites, as well as social media outlets, including the following:

  • Develop an interactive website available to the public, with a reserved file sharing platform for Action members.
  • Establish an advisory board of relevant representatives from various patient organisations in Action member countries.

Activities

 

  • Members of the WG will meet once a year and coordinate efforts.
  • Representatives from WG5 will be available to assist strategic dissemination and
    communication for other WGs.

Milestones

M5.1: Pre-startup WG meeting (Y1Q1)
M5.2: Launch of website (Y1Q2)
M5.3: Annual WG meetings (Y1Q3, Y2Q3, Y3Q3, Y4Q3)
M5.4: Gather representatives from relevant patient organisations in Action member countries to EDEM Advisory Board. (Y1Q2-Y1Q4)
M5.5: Annual dissemination of Action results, newsletters, communicated by all participants, including the EDEM Advisory Board, via their respective channels. (Y1Q4, Y2Q4, Y3Q4, Y4Q4)

Deliverables

D5.1: A COST Action website
D5.2: Annual dissemination and communication of the Action in all participating countries
D5.4: A fully updated website with Action material, e.g. practical ethical framework, recommendations for implementation and the educational toolkit on ethical dilemmas in dementia care

Team leader WG5

Hilde Thygesen

Professor
Faculty for Health and Social Science
Centre for Health and Technology
University of South-Eastern Norway
Tel.: +47 482 05 904
Mail: [email protected]